Caring for Rare Disease Caregivers

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Caring for Rare Disease Caregivers

A Guide for Family Caregivers of Loved Ones with Rare Diseases

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    Family Caregiving in Portuguez

    Portuguez
    • Os cuidadores e a depressão
     
    • A palavra “ajuda” não deve ser vista negativamente
     
    • Como posso conversar com meu ente querido sobre a doença?
     
    • Como comunicar os sintomas do ente querido
     
    • Como preservar a intimidade ao cuidar de seu filho
     
    • Como preservar a intimidade
      ao cuidar do cônjuge
     
    •  Aprendendo a pensar como gestor de cuidado
     
    • Lista de arquivos do paciente
     
    • Quais são as estratégias de comunicação mais eficazes?
     
    • O que faço a respeito da indignação?

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    © 2022 by Caregiver Action Network.

    Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with significant health needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.