Caring for Rare Disease Caregivers

A Guide for Family Caregivers of Loved Ones with Rare Diseases

  • Home

  • Caregiving Right Now

  • Take Care of Yourself

  • Complex Emotions

  • Family Matters

  • Other Places For Help

  • About Us

  • Portuguez Language Index

  • More

    About CAN

    To Learn More About Caregiver Action Network, click here!

    The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. CAN (formerly the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

    Our Rare Disease Caregiver Advisors
    Rhonda Buyers

    Executive Director, National Gaucher Foundation (US)

    Davor Duboka

    Executive Director, NORBS (National Organization of Rare Diseases Serbia)

    Toni Mathieson

    Executive Director, Niemann-Pick Disease Group (UK) and Board Member, International Niemann-Pick Disease Alliance

    David Pena

    President, Pide un Deseo (Mexico)

    Scott Radabaugh

    Patient and Parent, The FH Foundation (US)

     

          

    Our Mission

    The mission of the Caregiver Action Network (CAN) is to promote resourcefulness and respect for the more than 90 million family caregivers across the country.

    Our Goals
    Create Resourceful Caregivers

    Serve an increasing number of family caregivers with practical help, support and information.

    ​

    Reduce Caregiver Stress

    Improve the quality of life for family caregivers by reducing their day-to-day stress and financial distress.

    ​

    Create Respect for Family Caregivers

    Advance the case for family caregiver recognition and support.

    ​

    Create Capable Caregivers

    Build family caregiver confidence and capability through the dissemination of educational programs that demonstrate a positive impact on the lives of family caregivers.

     

          

    1150 Connecticut Ave. NW

    Suite 501
    Washington, DC 20036

    Visit Us:

    www.caregiveraction.org

      

    Email Us:

    info@caregiveraction.org

    • Facebook Clean
    • Twitter Clean

    Privacy Policy

    Disclaimer

    © 2020 by Caregiver Action Network. Created with support from Genzyme.