Family caregiving can be a full-time job. Your role includes so many important activities. You manage medications, provide transportation, and handle doctor appointments – to name just a few of the vital tasks that family caregivers perform on a daily basis.

 

If your loved one’s room already looks like a hospital room, you probably have already been exposed to one type of technology – medical devices in the home. But there are other types of technology that can help you with your caregiving responsibilities. Any number of companies are leaping into the market to give caregivers like you a much-needed helping handsome at a cost; some for free.

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Could you use technology to help you track medications? Use a GPS locator if your loved one wanders off? Maybe even a medical robot in the home? Well, these technology solutions all exist today. And more are being offered every month.

 

Caregivers are much more likely than non-caregivers to pursue online resources for health information, support, care, and advice. According to the Pew Research Center, 59% of caregivers say that online resources have been helpful to their ability to provide care, and, significantly, 52% say that online resources have been helpful to their ability to cope with the stress of being a caregiver.

 

Technology can help you be an active, engaged participant in your loved one’s care. Patients with chronic conditions (such as rare diseases), or their caregivers, who are "highly engaged in own their care" report fewer health problems, have a lower hospital re-admission rate and are less likely to experience a medical error.

 

There are apps, gadgets, and websites that can help you:

• Manage complex medication regimens

• Gather and report health data such as blood pressure and blood sugar

• Alert you to a seizure

• Learn more about your loved one's disease or condition

• And even bring together caregivers and volunteers through online communities

• In the case of genetic rare disease, there are also apps to help map the family tree

 

Sure, the world of technology may be changing faster than any of us can keep up with, but that’s actually good news: newer and better technologies are constantly being developed to help family caregivers and their loved ones manage complex care for rare diseases and promote their health and well-being.