Caring for Rare Disease Caregivers

A Guide for Family Caregivers of Loved Ones with Rare Diseases

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    When Keeping Your Loved One at Home Means Bringing in Help

    As any family caregiver knows, your commitment to your loved one is beyond question. Whether you’ve been providing care for a month, a year, or a decade, you’ve clearly dedicated yourself to ensuring that your loved one has the best care and quality of life possible for as long as possible. There may come a time in any caregiving relationship, however, when outside help is needed to maintain that quality of care. Outside help may be needed only on a temporary basis or it may be crucial to keeping your loved one in his/her home. When that time comes, knowing just a little about the different aspects of home care will go a long way toward making you feel more in control.

     

    Read More:

     

     - What is Home Care

     - Getting Started with Home Care

     - Who to Call for Home Healthcare 

    Caregiving Right Now
    Learning to Think Like a Care Manager
    Patient File Checklist
    Going to The Doctor
    Medication List
    How to Communicate Symptoms​
    Crisis Symptom Reporting Guide
    Technology Can Help Caregivers

    When Keeping Your Loved One at Home Means Bringing In Help

    What Is Home Care?
    Getting Started with Home Care
    Questions for Home Care Providers

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