Caring for Rare Disease Caregivers

A Guide for Family Caregivers of Loved Ones with Rare Diseases

  • Home

  • Caregiving Right Now

  • Take Care of Yourself

  • Complex Emotions

  • Family Matters

  • Other Places For Help

  • About Us

  • Portuguez Language Index

  • More

    What Can I Do to Help My Fatigue?

    Activity:

    • If you are at home with your loved one and s/he takes a nap, try and take one then, too, but for no more than half an hour.

    • Ask someone that you trust to stay over and care for your loved one so you can get some uninterrupted sleep.

    • Stay active during the day.

    • Set priorities for your activities throughout the day.

    • Try not to overload your daily to-do list.

    • Get at least 15 minutes of physical activity every day, such as walking.

    • Talk with your healthcare provider about what exercises are right for you.

    • See if you can get some help (paid or volunteer) with household chores, so that you have some relief.

    • Get out and enjoy a fun activity.

     

    Diet:

    • Eat nutritious healthy snacks throughout the day, such as a bowl of fruit, vegetables, or cheese.

    • Maintain a healthy diet.

    • Avoid high fatty foods and fried foods before bedtime.

    • Keep your hydration up by drinking water or other decaffeinated fluids.

    • Avoid caffeine before bedtime.

     

    Psychological:

    • Try relaxation therapy, guided imagery, and meditation.

    • Join a support group. Support groups can provide suggestions and reassurance in a safe environment.

     

    Communication:

    • Keep the lines of communication open with your loved one and share the level of fatigue.

    • Share your feelings with your loved one and friends.

    Take Care of Yourself 
    Help is Not a Dirty Word
    Getting the Help You Need
    Lifting Your Loved One Safely

    What Can I Do...

    ...About My Own Disturbed Sleep?
    ...To Help My Fatigue?

    How Do Caregivers Cope With...

    ...Their Time Demands?
    ...Role Overload?

    1150 Connecticut Ave. NW

    Suite 501
    Washington, DC 20036

    Visit Us:

    www.caregiveraction.org

      

    Email Us:

    info@caregiveraction.org

    • Facebook Clean
    • Twitter Clean

    Privacy Policy

    Disclaimer

    © 2020 by Caregiver Action Network. Created with support from Genzyme.