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Caring for Rare Disease Caregivers
A Guide for Family Caregivers of Loved Ones with Rare Diseases
Caregiving Information You Can Use Now
Take Care of Yourself
Family Matters
Feelings You May Have
Other Places to Turn for Help
There are many families facing similar issues. Click here for Videos and Blogs by caregivers like you!
It's helpful to read other people's stories, know I'M not alone. We DO make it through the previous day and then get up to do it all again.
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Coping with Rare Diseases
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