Caring for Rare Disease Caregivers

A Guide for Family Caregivers of Loved Ones with Rare Diseases

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    Caregiving Information You Can Use Now
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    Take Care of Yourself
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    Family Matters
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    Feelings You May Have
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    Other Places to Turn for Help
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    Caregiver Voices

    There are many families facing similar issues. Click here for Videos and Blogs by caregivers like you!

    When Caregiving Is Lonely

    There is No Roadmap

    Because Family Caregivers Are There Through It All

    What Caregivers Need to Know About Rare Diseases and Social Security Disability Insurance

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    Join the Conversation

    It's helpful to read other people's stories, know I'M not alone. We DO make it through the previous day and then get up to do it all again.

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